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Variegate porphyria
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#	Item
11	June, 2009 Educating to Save Lives — National Porphyria Awareness Week, 2009 Raising Awareness to Save Lives: Highlights from National Porphyria Awareness Week Sound(ing) Off! About Porphyria on KPRL Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:32:43 Acute intermittent porphyria Variegate porphyria Hereditary coproporphyria Erythropoietic protoporphyria Erythropoietic porphyria Hepatic porphyria Systemic lupus erythematosus Peripheral neuropathy Hemin Porphyrias Health Medicine
12	June, 2010 Porphyria Awareness Week 2010: It’s All About Our Members! APF members did a dynamite job this year engaging local and national media, raising funds, and getting porphyria awareness into hospitals and medic Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:32:32 Medicine Porphyria Acute intermittent porphyria Erythropoietic protoporphyria Variegate porphyria Erythropoietic porphyria Hereditary coproporphyria Afamelanotide Porphyrin Porphyrias Chemistry Health
13	3rd Quarter, 2006 SOUTHERN CALIFORNIA IN TOUCH MEETING Recently, The Southern California Porphyria Support group was graciously hosted by Mira Geffner and her husband, Paul Southworth in their lovely home in Los Angeles Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:32:47 Medicine Porphyria Acute intermittent porphyria Variegate porphyria Erythropoietic protoporphyria Erythropoietic porphyria Hemin Fentanyl Porphyrin Porphyrias Chemistry Health
14	3rd Quarter, 2007 Exciting New Research Project: Dr. Herbert Bonkovsky Life requires energy. Except for mature red blood cells, all cells in the body have organelles called “mitochondria”, which are the “energy pl Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:32:38 Medicine Porphyria Acute intermittent porphyria Variegate porphyria Hereditary coproporphyria Erythropoietic protoporphyria Erythropoietic porphyria Peter Tishler Porphyrin Porphyrias Health Chemistry
15	3rd Quarter, 2012 Dr. Eric Gou Protect the Future’s Newest Doctor The Protect the Future (PTF) program is one of the most important programs the APF. To explain, the present porphyria experts have been the major sourc Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:31:53 Medicine Erythropoietic protoporphyria Variegate porphyria Hereditary coproporphyria Heme arginate Afamelanotide Hemin Hydroxychloroquine Rare Diseases Clinical Research Network Porphyrias Chemistry Health
16	3rd Quarter, 2008 A Gift of Friendship and Education Over the past year, we received a number of requests from physicians around South America asking us to facilitate educational meetings about porphyria diagnosis, trea Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:32:41 Porphyria Acute intermittent porphyria Erythropoietic protoporphyria Variegate porphyria Hereditary coproporphyria House Peter Tishler Porphyrias Health Medicine
17	2nd Quarter, [removed]President’s Award CONGRATULATIONS!!! We are proud to announce that APF member, Dave McRae, has been presented with the APF 2007 President’s Award. Dave and his wife, Laurie, are Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:32:39 Acute intermittent porphyria Erythropoietic protoporphyria Variegate porphyria Peter Tishler Genetic testing Porphyrias Health Medicine
18	APF 4th quarter newsletter Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:32:44 Variegate porphyria Acute intermittent porphyria Erythropoietic protoporphyria Heme arginate Pancreatitis Porphyrias Health Medicine
19	Porphyria National Digestive Diseases Information Clearinghouse What are porphyrias? Porphyrias are rare disorders that affect mainly the skin or nervous system and may Add to Reading List Source URL: digestive.niddk.nih.gov Language: English - Date: 2014-01-08 08:40:48 Medicine Hepatic porphyria Erythropoietic protoporphyria Acute intermittent porphyria Hereditary coproporphyria Erythropoietic porphyria Variegate porphyria Gunther disease Porphyrin Porphyrias Health Chemistry
20	Acute Porphyrias in Turkey Ismail Kurt1, Metin Uyanik1, Erdim Sertoglu2, Serkan Tapan1 1Gulhane School of Medicine, Department of Medical Biochemistry, Porphyria Laboratory, Ankara, TURKEY 2Ankara Mevki Military Hospita Add to Reading List Source URL: www.rare-diseases.eu Language: English* - Date: 2014-05-13 08:36:31 Metabolism Porphyria Acute intermittent porphyria Porphobilinogen Porphyrin Variegate porphyria Hereditary coproporphyria Robert J. Desnick Chemistry Porphyrias Health

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